One Mums Story of Losing Her Daughter to Cancer

In 2010, Lucy Jones lost her baby daughter Sienna to neuroblastoma,  one of the most aggressive and deadly childhood cancers. 7 years later and Lucy is the CEO of Neuroblastoma Australia whose main fundraiser of the year, Run2Cure Neuroblastoma takes place on Sunday, 4 June. Read Lucy’s Story  …

My daughter, Sienna was diagnosed was Neuroblastoma when she was just 9 months old.  My partner Oliver and I had never even heard of this disease, but we very quickly found out that it was an extremely aggressive, life-threatening and rare children’s cancer and we were going to have to give our all to save our precious girl.

Sienna fought this disease with amazing strength and spirit as she underwent seven high dose rounds of chemotherapy, two operations, a stem cell transplant and four weeks of back to back radiotherapy.

Getting through each phase of this gruelling and relentless treatment was incredibly hard and we were often warned that Sienna could die from the treatment itself due to possible infections from her immune system being destroyed or via other complications.

We were therefore elated when she went into remission and hoped that we had truly beaten this horrendous disease.  Sienna flourished into a beautiful little girl with lots of giggles, cheekiness and with an unbelievable amount of energy. She truly loved life and made every second count.

Our hopes and dreams for Sienna came crashing down however 11 months later, when our gorgeous girl relapsed.  More treatment followed and we desperately searched to find alternative treatments or a cure, but Sienna just relapsed further.

Tragically, we lost our amazing little girl – she was only two and a half years old.  Watching Sienna fight and then lose her battle has to be the worst thing a mother could ever experience.

We will forever miss Sienna’s enormous presence and mourn her lost future.  I can’t however turn my back on neuroblastoma and have continued to fundraise and raise awareness of neuroblastoma – as no child should have to endure this dreadful disease and no parent should have to watch their child die.

Raising over $1.3 million to date

In 2010, I established a charity Neuroblastoma Australia with another mum who had a child diagnosed with neuroblastoma. We have raised over $1.3 Million for dedicated research projects into neuroblastoma and know research can significantly change survival rates – by investing in research today we will save lives of children in the future.

Run2Cure, June 4th, The Domain, Sydney

Our main fundraising event is Run2Cure Neuroblastoma and it takes place on Sunday, 4 June in the Domain, Sydney. There is a timed 10km, 5km, 3km fun run with a 1km Little Heroes fun run for children 5 and under with their families – prams are very welcome too.

There are also lots of fun children’s activities including pony rides, face painting, kindy farms, jumping castles plus food stalls.

We would very much welcome support from the community to help us raise over $150 000 for research. Please visit www.run2cure.org.au to register or find more information on the fun run.

Lucy’s Story provided by Neuroblastoma Australia.

Author: Laurice Klaire

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